Besser als sofort Tod , leider war seine Lebenserwartung noch nie sehr hoch, Er hatte mir mal erzählt, dass seine Lebenserwartung bei 20Jahren liegt, bzw jetzt nicht mehr. Aber das kommt wohl wegen seinem Herzen, und jetzt noch wegen der Operation.
Echt sehr schade
Mehr kann ich dazu jetzt grad net schreiben.... ;(
Some of you may know me as "Dusel" from Twitter, YouTube,
Myspace & Co.. Well anyway I decided to start my own blog
in hopes that some of you might enjoy reading this. I
know that I'm a bit late, maybe I should’ve started half
a year ago, but better late than never! Incase some of
you are reading this and have no idea who I am. I'm going
to introduce myself now.
My name is Dustin, I'm 16-years-old and I'm from Germany.
Please excuse my bad English, I try to learn this language
as fast as I can but it's not that easy while lying in a
hospital.
So, normally I would write all this stuff like... I have
a sister, a mom, a dad and all these other basic things,
but now I’ll tell you in more detail. My dad passed away
about 6 years ago from a rare heart disease because the
doctors didn’t recognize his illness early enough... this
is destiny. So 4 years after my dads passed away and I
had my first small heart attack. I went to the hospital so
they could check what was wrong with me. It didn’t take a
long time until they told me the result of the tests. I
had cardiac insufficiency. A rare heart disease and
coincidentally the same sickness my dad had... but the
doctors hadn’t recognized it earlier... I think this is
destiny.
new heart, new life, new start - AJ Rafael
Anyway this is approximately how my story began. Months
ago a German author came to me and asked if I wanted to
write a book with him. Since then we have been writing a
biography about my history, present and future. This blog
will contain a short version of my previous life; I hope
you enjoy reading about it.
For the last 2 years I’ve been lying in the hospital here
in Cologne, Germany. Sometimes I travel around the world
to test some new therapies or medicaments. The first year
in hospital was quite relaxing. Since I stopped going to
school, I try to teach myself as many things as I can. I
spend my time drawing, or playing the guitar.
Then, at the beginning of this year, I had more and more
heart attacks and my condition became worse. They put me
on the list. "The list" is a congeries of people who are
waiting for an organ donor. It took them nearly 4 months
until they found a donor. During a 60 hour surgery they
engrafted me the heart of a 23-year-old.
Those who have been following me on twitter for a long
time now would remember when I had my heart surgery
Since then I have had 26 surgeries. The heart
transplantation was meant to be my life saver but it
didn’t work out how it should have been. I was healed
from cardiac insufficiency but my new heart was too
weak to bear with my body. They engrafted me a
pacemaker and I got attached to mechanical pumps that
are currently holding me alive at night. My heart
beats only about 10 times per minute. The blood is
flowing through to slow that it’s starting to dry
up, so some of my arteries and veins are closing. But
the worst thing happened just about a month ago.
The blood pressure in my head was that big that it
caused a tumor. Even though it was a benign tumor it
could have been deadly so they decided to cut it out.
The operation took place on July 24th. The operation
was successful but for some reason the blood pressure
didn’t decrease, so I passed out and was in a coma
for 2 weeks. I woke up just 2 days ago without knowing
anything that had happened to me. I didn’t know that
I couldn’t even breathe by myself and almost died. But
now that I know I survived, I must have a lot of luck
and I’m thankful for everything. Thank god.
Everything is okay in the end. If it's not okay,
then it's not the end
Every 4 weeks I get a new life expectancy. There
was a time where they told me that I’ll just live
for 7 more months, then I had 1 more year and at
another time I had 2 more years to live. My actual
life expectancy is about 23 months. I accepted that
I will die and I’m okay with it. My last chance is
a therapy I’ll do in October in Santa Monica.
Let’s pray that another miracle will happen!
I hope this is enough for my first blog
I will write more soon!
Oh Mein Gott.
Ich hätte nie gedacht das so etwas "besonderes" in einem so nahen Umfeld von mir passiert.
Alles was um mich herum geschieht sehe ich mit ganz anderen Augen.
Ich versuche zu verstehen woher du die Kraft und die Energie hernimmst, Dusel.
Soviel Unglück und doch soviel Glück, das ist etwas besonderes.
Die Menschen kommen zu dir, sie erzählen deine Geschichte weiter. Und das nur weil du soviel Lebenswillen hast weiterzumachen.
Ich weis genau du gehörst zu denen die aufjedenfall wieder auf die Beine kommen ich denke da sind wir hier uns alle miteinander einig.
Und damit du bescheid weist, wir sind immer bei dir.
Zitat von Noname
Verzeiht mir die Piotätlosigkeit, aber was ist denn jetzt mit Dusel ? ich dachte es geht bergauf mit dem Jungen ?
Zitieren
